It wasn’t until I mentioned my situation to an old friend, that I started to discover how common endometriosis is, 1 in 10 women in the United States suffer from endometriosis and on average it takes 10 years to diagnose. She and her sister both had gone through similar experiences and recommended the Facebook group, Nancy’s Nook. This changed everything. Nancy’s Nook provided so many resources on how to advocate for yourself when meeting with surgeons who suggest outrageous hormone altering drugs or hysterectomies. It also provided a list of vetted, skilled excision surgeons. I learned very quickly that all of the surgeons I had met previously, did not show up on this list. I felt more empowered than ever and spent a few weeks reading through all of the information on Nancy’s Nook. I finally was able to get an appointment with the only surgeon in NYC that actually accepts insurance for this type of surgery (and who was on the approved excision surgeon list). I finally felt like there was a light at the end of the tunnel. This was the end of February, and the first available consultation appointment wasn’t until April, with pending surgery in May. So now I just had to wait. Feeling like I had to take some control of the situation, I started an anti-inflammatory diet. Endometriosis is an inflammatory disease that can be aggravated by caffeine, sugar, alcohol, preservatives, animal proteins, soy and gluten. We had been vegan for nearly 4 years at this point, but I made the extra effort to cut the remaining inflammatory agents from my diet as well.
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